Risa's Affiliate Websites & Apps
TransplantFirst Academy’s mission is to empower preemptive (live-donor) kidney transplant opportunities through proactive patient self-advocacy.
TransplantFirst Academy exists to ensure no patient is denied the right to proactively explore preemptive kidney transplant opportunities
The Donor-Seeker® Program is the ONLY 15-Minute 4-part video series to help you “Talk-Up“ your search for a living kidney donor.
This 4-part video series and resource library will boost your confidence to share your story while building a team with Donor-Magnet® passion! Program is available online or as a Mobile App, and videos are offered in English & Spanish
Community Partners & Friends
As the oldest and largest, independent kidney patient organization in America – AAKP (American Association of Kidney Patients) is dedicated to improving the lives and long-term outcomes of kidney patients through education, advocacy, patient engagement and the fostering of patient communities.
The American Society of Transplantation is an organization dedicated to advancing the field of transplantation and improving patient care by promoting research, education, advocacy, organ donation, and service to the community.
At the Transplant Institute at Banner – University Medical Center Phoenix, our experienced physicians and support teams care for patients in need of kidney, pancreas and liver transplants, and provide comprehensive care to people with advanced liver disease.
CareDX’s mission is to transform transplant patient care through novel surveillance management solutions.
CareDX brings artificial intelligence to transplant care by partnering to improve transplant outcomes.
The Erma Bombeck Project mission is to increase organ donation awareness and registration, while educating the public about the option of living kidney donation.
It’s campaign, “Save A Life. It’s In You.” aims to narrow the gap between the number of individuals waiting for a kidney, and the number of kidneys available. Download PDF Brochure : Save A Life It’s In You .
Watch Videos on the Donor Experience.
Eurofins | Transplant Genomics aims to improve transplant outcomes through molecular diagnostic tests that detect early signs of graft injury, differentiate among actionable causes, and enable optimization of therapy.
Learn more about a non-invasive alternative to surveillance biopsies for kidney transplant recipients at the link below:
https://transplantgenomics.com/patient-frequently-asked-questions/
Get Ahead of Rejection
Have you ever heard of silent rejection before? Silent rejection, also known as subclinical acute rejection, or subAR, is the earliest form of rejection in kidney transplant recipients. This form of rejection is extremely common and can have significant consequences if left undetected and untreated. However, the earlier silent rejection is identified or ruled out, the sooner you can get back on the path of healthy living. Learn how to get ahead of silent rejection by visiting www.GetAheadofRejection.com
Medicare coverage for their immunosuppressant medications for the lifetime.
For more than twenty years, advocates fought for the extension of Medicare part B coverage of immunosuppressive medications for kidney transplant recipients. Thanks to these collaborative efforts the Immuno Bill was passed into law in December 2020, providing kidney transplant recipients Medicare coverage for their immunosuppressant medications for the lifetime of their transplant!
The core mission of the National Kidney Foundation of Arizona (NKF AZ) is to improve the quality of life for Arizonans with kidney failure. NKF AZ offers help & hope to kidney patients, including those on dialysis, waitlisted for transplant and post-transplant recipients — by providing educational resources to thousands of patients.
Additionally, NKF AZ provides emergency patient aid to kidney patients and transplant recipients across Arizona —while also advocating for organ donation awareness.
The PAPR Coalition’s Mission is to support continued access to (and choice of) appropriate over-the-counter (OTC) pain relief. The Coalition accomplishes its mission by advocating and supporting evidence-based education on safe use of OTC pain relief options as a part of a patient consumer’s comprehensive pain management plan developed w/their health care provider. *Acetaminophen is the preferred choice over non-steroidal anti-inflammatory drugs (NSAIDS) due to concerns about potential reduction in kidney function.
PatientPoint® is the patient engagement platform that offers digital engagement solutions for more effective patient interactions across the entire patient care journey.
From patient acquisition to in-office and hospital engagement to telehealth and remote care, PatientPoint is there, helping drive better health outcomes, and a superior patient experience.
The PKD Foundation (PKDF) is the only organization in the United States solely dedicated to finding treatments and a cure for polycystic kidney disease (PKD).
The PKDF funds research, education, advocacy, peer mentor support—and disease awareness on a national and local level.
Their goal is simple: To deliver treatments and a cure for PKD.
The American Society of Transplantation “Power2Save” is dedicated to advancing the field of transplantation and improving patient care by promoting research, education, advocacy, organ donation, and service to the community.
UC Davis Health Transplant Center’s goal is to provide potential transplant recipients with information about the risks and benefits of transplant, the evaluation process, the waiting list, surgery and hospitalization, medications and follow-up care. UC Davis has a large team of professionals who are ready to help you in any way possible during this important time.
*UC Davis was the 1st center to offer their patients access to the Donor Seeker Program.
(TFA) mission is to empower preemptive (live-donor) kidney transplant opportunities through proactive patient self-advocacy.
TFA exists to ensure no patient is denied the right to proactively explore preemptive kidney transplant opportunities
Veloxis Pharmaceuticals knows what transplant means to patients, and their leading innovation to improve their experience.
Their mission is to transform transplant medicine together, by achieving more through a shared commitment to transplant medicine.